Disqus - Latest Comments for MightyMouth

Re: Dear hospitalist: Hello from a former patient

MightyCasey — Mon, 23 Dec 2019 11:17:08 -0000

Society of Hospital Medicine

Re: Dear hospitalist: Hello from a former patient

MightyCasey — Mon, 23 Dec 2019 09:32:33 -0000

LOVE this. I know many hospitalists (produced podcasts for SHM for 5+ years), and as a group they're pretty woke re partnering w/patients - this particular MD is basically genius level there. I bet your email makes their decade.

[and my MRI song = Koyaanisqatsi by Philip Glass koyaanisqatsi =D]

Re: Dear Father Christmas—The BMJ Patient Advisory Panel’s wish list

MightyCasey — Tue, 17 Dec 2019 13:13:52 -0000

I went in a different direction entirely ...

"All I Want for Christmas ... Is a Better Scientific Publishing Model"
https://powerfulpatients.or...

Re: Consumers And Health Briefing

MightyCasey — Tue, 05 Mar 2019 13:48:33 -0000

Know that I say the above as someone who's been at many Health Affairs events like the one today, traveling on my own dime to hear, and participate in, the discussion. I get that publishers need to make money. So do those of us who work the ground-level patch to drive real system change - the citizen scientists and grassroots policy wonks who've wound up in this work because we've seen, and experience, how the status quo delivers diminishing returns on outcome, quality, safety, and scientific discovery to drive better human health. You guys (publishers) seem to be doing OK, particularly when viewed through the lens of an always-on-the-ragged-edge-of-broke patient level policy wonk. Not many of us can pony up $147/year for digital access, and $15/throw for individual article access adds up fast, for those of us who work 40+ hours a week on the issues addressed in Health Affairs and countless other journals. So, yeah ... you thanked me for my comment, but I'd really much prefer having a discounted subscription for digital access for patient level citizen scientists/wonks. F'rinstance, having "Consumer-Facing Data, Information, And Tools: Self-Management Of Health In The Digital Age" paywalled is plucking this ground-level data wonk's last nerve. Again.

Re: Consumers And Health Briefing

MightyCasey — Tue, 05 Mar 2019 10:43:11 -0000

No, not for Health Affairs events. Patients/consumers are paywalled outta seeing most of the content of the journal, too, so we pretty much don't exist outside of as data points in research and policy studies.

Re: SXSW PanelPicker®

MightyCasey — Fri, 24 Aug 2018 10:49:32 -0000

My mission mantra (tyvm Arthur Ashe) is "start where you are, use what you have, do what you can" - the process of experience design MUST walk that talk, designing from the outside in, starting with the end-user *at the table* while wire-framing the proposed solutions. Otherwise, we wind up with more shiny objects, and no ACTUAL fix for the challenges at hand. This panel has eons of lived experience doing it right - hearing from them would fuel a lot of forward progress in user-centered design in healthcare, which is woefully short on it.

Re: SXSW PanelPicker®

MightyCasey — Thu, 09 Aug 2018 10:47:29 -0000

This panel knows this subject inside and out - only disappointment is that they didn't add a patient/citizen tech developer to the panel, but that's not enough of a demerit to make me do anything but upvote this baby!

Re: SXSW PanelPicker®

MightyCasey — Tue, 07 Aug 2018 14:14:32 -0000

NOTHING. ABOUT. ME. WITHOUT. ME.
In the real world, with real information.
#winning

Re: SXSW PanelPicker®

MightyCasey — Tue, 07 Aug 2018 14:13:39 -0000

Humans created tech - here's a great session for those of us who'd like to see tech not destroy humanity.

Re: Would You Rather...? The Uses And Limitations Of The BEA's Health Care Satellite Account

MightyCasey — Sat, 07 Jul 2018 09:13:46 -0000

The opacity of the American healthcare payment model has been assiduously preserved for decades by the folks benefiting from it, via strong lobbying presence in Congress and in state capitols. Until we can find a way to circumvent that, we'll stay in the dark. Given the current administration and Congress's POV on healthcare access (it's only for those who can pay), faint hope that curtain will lift.

Re: Dear kids: school is your job. Act accordingly.

MightyCasey — Sun, 11 Mar 2018 14:15:27 -0000

What a great idea!!

Re: Dear kids: school is your job. Act accordingly.

MightyCasey — Sat, 10 Mar 2018 11:05:09 -0000

Thanks!

Re: Trust

MightyCasey — Sun, 04 Mar 2018 09:09:08 -0000

Ain't it a b**ch when you find out what your share on Medicare Part D is, no matter what plan you buy? Why we all gotta fight daily to let Medicare negotiate drug prices, instead of just getting stuck with whatever industry decides they're gonna charge. For folks with chronic conditions (hello, MS!), this can force them to choose between paying the mortgage and paying for meds. Again putting paid to the myth that "American healthcare is the best in the world." Nope, just the most expensive.

Re: Munk Debates - American Democracy

MightyCasey — Fri, 13 Oct 2017 10:07:45 -0000

The healthcare lobby - which makes the Pentagon look like homeless people - worked hard to make sure they got as many of the beans as possible in the negotiations to craft and pass the ACA.

No, coverage does not equal care, but COVERAGE is required to ACCESS care in the crazy-train we call a healthcare system in the US. All of the money on the table has the status quo dedicated to maintaining itself, 'cause who'd want to give up an industry revenue pile of $3T+/year?

That industry-think is what's to blame here, and it's all about the money. People/patients/lives? Only as it relates to the revenue. This debate is the usual suspects arguing about how to divide up the pie. I'd like to see that pie burned in a hot fire, starting with the slice that's tagged for Employer Sponsored Insurance.

Oh, and on that coverage/care scale, too often coverage only puts one in the way of over-treatment, with incidentalomas and wallet biopsies rife for those who actually do have coverage. 'Cause the industry's chasin' that coin ...

Re: Here’s What Killed Steve Jobs

MightyCasey — Sat, 19 Aug 2017 12:21:26 -0000

In re your *solid* call to connect with patients and colleagues to advance real-not-fake science, this just in (from 2012)! We are making progress, but it's inch by bloody inch ... http://circoutcomes.ahajour...
I love you guys =)

Re: The Depressing Truth About Hipster Food Towns

MightyCasey — Wed, 05 Apr 2017 15:49:54 -0000

Resources for those with RESOURCES (translation: money, honey). No money big problems, including hour+ bus trips to/from affordable supermarkets.

Re: Healthcare Has a Person/Problem Conundrum. So, What’s The Fix?

MightyCasey — Thu, 23 Mar 2017 11:31:32 -0000

All of this doesn't amount to a hill of beans if people cannot ACCESS healthcare, and that's the biggest issue the US faces. A person can self-hack a problem like knee pain, or a head cold, but what about cancer? Or MS? Or Parkinson's? Until we shift the POLITICAL calculus around this problem, we'll be stuck with the cash version of hemorrhagic fever, while our insurance-based payment system turns into a national eugenics program.

Re: 25 Years to Diagnosis: How I was diagnosed with Behcet’s Disease, a rare, orphan disease

MightyCasey — Tue, 14 Mar 2017 12:06:53 -0000

GotDAMN, girl. You are one powerful warrior queen, even with all your so-not-TMI physical adventures. Big hugs, much love, and if I can ever be of any service to your mission, all you gotta do is ask.

Re: Stop talking about ‘quality’ healthcare if you don’t deliver it

MightyCasey — Tue, 14 Feb 2017 13:21:58 -0000

Good grief, man, you're really Johnny One Note, aren't you? Instead of offering any actual insights, you're all about the ad hominem attacks, still. Got any recommendations on improving healthcare access and/or quality, or is it just about "I hate [insert name of today's target]" with you?

Re: Repeal and replace turns to ‘fixing’ Obamacare as AARP rattles sabers

MightyCasey — Thu, 09 Feb 2017 12:35:37 -0000

Mike, are you off your meds again? Rather than pop up like a jack in the box in comment threads, I might suggest that you tend to your own garden. Google has IDed the website for your company as "suspicious" and a possible "malware threat." Since you purport to lead a company that's expert on health data, having Google throw up a warning, rather than your landing page, could be impacting your business. Fix that, then we might take your opinions more seriously.

Re: Patients are pigs? Wow. Thanks, Medrio!

MightyCasey — Sat, 14 Jan 2017 09:54:25 -0000

Updated the wording - thanks for pressing for clarity =)

Re: Virginia Lawmakers Discuss Direct Primary Care Bill - NBC29 WVIR Charlottesville, VA News, Sports and Weather

MightyCasey — Wed, 11 Jan 2017 13:24:28 -0000

Sounds great ... until you try to figure out how to pay for direct primary care and keep an insurance policy in force, too. Direct primary care is a bandaid on brain surgery. Until the entire system's volume mindset (lots of care, lots of it unnecessary or duplicative) shifts, direct primary care won't amount to a hill of beans against a tsunami of rising costs.

Re: The day that the pediatricians quit

MightyCasey — Thu, 06 Oct 2016 07:09:58 -0000

Since it takes, on average, 17 years for proven clinical science to be adopted in clinical practice by 50% of physicians (Balas & Boren, Managing Clinical Knowledge for Health Care Improvement, http://bit.ly/2dUyPTS), I'm amazed that you've literally thrown the baby - an informed, engaged patient/parent who is focused on achieving the best outcome possible - out with the bathwater - the small but vocal percentage of wingnuts who believe what Jenny McCarthy or Mehmet Oz tell them. Shortsighted, and if you truly believe that, perhaps you *should* quit.

Re: My Take On The Crisis That Was The ‘Opioid Crisis’ Panel at MedX 2016

MightyCasey — Wed, 21 Sep 2016 13:05:33 -0000

I'm offering an opinion, not a judicial ruling. A dive into Joanne Kenen's oeuvre on Politico, and the roadshow she's doing this year around "the opioid crisis," shows a clear agenda to this old warhorse journo. Advocacy journalism can be laudable, or a regrettable trip down Lack of Balance Lane. Everyone on earth has an agenda, but not all of those agendas fit with either Patients Included, or Everyone Included. I'm not saying there was any kind of conspiracy on the part of the MedX board, just that there might have been insufficient due diligence to clarify what Kenen might be bringing on stage with her, agenda-wise.

Re: My Take On The Crisis That Was The ‘Opioid Crisis’ Panel at MedX 2016

MightyCasey — Mon, 19 Sep 2016 15:51:41 -0000

You kicked a$$, baby. But I gotta say that any conf organizer that "lets this happen" is an un-indicted co-conspirator with any panel moderator's agenda, hidden or otherwise. Particularly a Patients Included conf. YOU know you were supported, because you'd been there five times. A brand new patient participant might have been crushed under the wheels of the moderator's agenda, for good and all. Bottom line: we are not game pieces to be played by ANY PART of the healthcare conversation. I feel like MedX set you up, more than a bit, by allowing that Politico editor any room at all to think that you were NOT the key player on that panel.